Our son was born on October 26th, 2010 at 7:20 PM in Newport Beach, CA. He was a whopping 8 pounds 10 ounces and 21 inches long, which explains the discomfort I felt on my petite 5 foot 2 inch frame!
The night before our induction, I was sleeping and praying simultaneously. The Lord knew the desires of my heart for the baby inside me, yet I had to ask the Lord to strengthen my heart for the worst, if it was what He willed. Labor took longer than expected and during that waiting time, I kept thinking that in just a few hours, our lives could change drastically forever.
I felt prepared to have my son intubated if needed, or to bring him home with oxygen equipment, or to enter the world of Down Syndrome, or to rush to get him an MRI due to some other obvious signs of Joubert Syndrome.
But for some reason, that is not what my Father willed. He willed for the Neonatology team to examine him and then then take my hand to say, “Your son is perfect.”
He is one week and one day old today and we are little in shock. So far, he is like any other healthy baby. Derek is using his eyes to look around and his muscle tone is very strong; both very good signs that he may not have Joubert Syndrome. And yet I look at our beloved Marcus, who couldn’t use his eyes adequately for months, and who still struggles with low muscle tone and I think that he is perfect too.
Our Derek, whom we thought was an “accident” when we found about the pregnancy early this year, is a truly undeserved gift from the Lord. Mike and I have three children now. I can’t believe it. I had so longed for the chance to have more children after learning of Marcus’ diagnosis and the genetic risks involved. And for some mysterious reason, the Lord heard these cries of my heart and answered so lavishly. This humbles me completely.
I can’t help but lift up these 3 precious souls to the Lord and beg him for His grace to raise them and love them in the love of Jesus.