I normally don’t blog when I’m sad. I usually journal about it privately and wait till the joy creeps up again to blog about the sadness in hindsight. But today, for some reason, I just feel like being a little more raw before you, my family, my friends, people I know but have never met, people I don’t know at all.
The other day, Marcus and I were reading about Jesus healing the blind man. I asked him if it was easy for him to see or hard for him to see like the blind man. He said, “Hard.” Then he said, “I can’t see in the dark.” For the past 6 months to a year, Marcus has been saying more that he’s scared of the dark and that he can’t see in low light conditions. This isn’t surprising considering his Retinitis Pigmentosa. But we can’t help but wonder if it’s getting worse, or if it’s that Marcus’ speech is just emerging enough for him to express to us what he’s been seeing or not seeing all along.
In any case, it’s a rude reminder of what the doctor has told us…that Marcus’ eyes have very limited function and that he will eventually lose the vision that he has.
I’m so sad. I ache. I feel weak and burdened. My heart is weary from all that Joubert Syndrome entails and how it’s affecting all the other families we know. I wish the Lord would come right now to take us to our eternal home, where Marcus will be able to run, sing, jump, and SEE the beauty of His maker. I long for Him to come and rescue me from this perpetual burden, to take me to where He is, so I could just lay in His arms and worship and rest.
Praying the Lord will keep me convinced of this promise:
For I am sure that neither death nor life, nor angels nor rulers, nor things present nor things to come, nor powers, nor height nor depth, nor anything else in all creation, will be able to separate us from the love of God in Christ Jesus our Lord.
– Romans 8:38-39
My sister sent me this Charles Spurgeon devotional and I was encouraged by it: